• Paroksismal Noktürnal Hemoglobinüri / http://pnhhastaligi.com/
• International PNH Interest Group / http://www.pnhinterestgroup.org/
• PNHSource | Patients & Caregivers / http://pnhsource.com/
• Aplastic Anemia & MDS International Foundation / http://www.aamds.org/
• Canadian Association of PNH Patients / http://www.pnhca.org/
• pnhsaa | PNH Support Assosiation Australia / http://www.pnhsaa.org.au/